Kronically Kayt

Relationships with chronic illnesses especially ones that cause pain are fucking hard. (Least in my opinion) Friends tend to fall by the way side for the most part. Their busy “normal” lives seem as alien to you as your pain filled life does to them I guess. If, like myself, you are unable to work, somedays can get very lonely. Suddenly a chat with the butcher about the weather, meeting someone on a dog walk, the checkout person in Tesco almost seems like a proper conversation. Nights out become so much hard work that you are lucky to get out 3-4 times a year (at least that’s me) and afterwards it can take 2 days to get over it and that’s without even drinking alcohol. If I do drink it will be for 3 days or so. Family members can be tricky too. I’m lucky in that my family are so supportive and caring but that in too can be kinda hard because I hold back a little for fear of worrying them not wanting to add to the constant level of worry I know they hold on to since I firs...

Doctors........ It's so hard to get a good one. I had a great gastroenterologist when I was first diagnosed with Crohn's, Professor Gleeson, who unfortunately retired about 2001. Since then I hadn’t met my new specialist only a series of minions of hers. Until this year 2017 and when I met her I cheekily said “It’s nice to put a face to the name”. Hehe However in 2012 when I was there the doctor asked if I was stressed or worried about anything and I mentioned that I was getting married the following year and was nervous about the day and my urgency issues. His answer to me a thirty odd year old woman was "Why don't you wear an adult nappy (diaper for any Americans out there)". I was disgusted. Where was his empathy or caring? I said nothing and got up and left. When it comes to my Fibromyalgia I met one lovely rheumatologist whose name escapes me right now, he was the one who told me I had Fibromyaglia. After that I saw a rheumatologist that spent t...

Everyday is completely different. Planning for events, weddings, parties etc is damn near impossible. The best you can do is give yourself two to three days of almost complete rest before hand and even then it’s not always enough. Sometimes all the rest in the world won’t help. You wake up and you just know.... you feel it almost as soon as you become in anyway conscious. Maybe it’s the pain creeping it’s way inside you leg bones, between your shoulder blades or maybe it’s the fatigue draining you like a vampire. You haven’t even gotten up yet and you are already dreading the day. Dreading the shower and getting ready, traveling and that’s before you even begin to factor in being a person. By that I mean talking to people, trying to listen to them and interact in a real way while inside you are in agony and repeating in your exhausted head “ when can I sit, when can I go home, will I lie and say I am fine?” Then horror of horrors you realise they are st...