Kronically Kayt

Omg it does. I was on antibiotics and steroids for 7 days and an inhaler still when needed. It was awful! wasn't just a hacking painful cough, it was not being able to catch your breath, my already low levels of energy even lower. It’s taken 2 and a half weeks to feel well enough to go xmas shopping lol.   I had to reschedule a cat scan on my carotid artery which I have no idea why I'm having which will now happen this Wednesday but also the following week I've to get an ECG and BP monitor for 24 hours as when I was in the doctors for the bronchitis my BP was 150/130 twice which scared my doctor but not me at least not right then but then when she said that was stroke territory.    I've always gotten high readings with blood pressure tests; it affects my Reynaud's a lot. My hand begins to get that prickly painful feeling which makes me feel ick so my bp goes up but not this high.     I was trying not to worry but I got feck all sleep that night worrying abou

So, I’ve done it again! Every time I write in this I promise to write more often and now its been almost a year!!! I really shall endeavor from now on to do this at least bimonthly, if not for anyone who reads this but for my brain pan. So, 2022 thunders towards its end. Health wise I’ve had some new fun sent my way. Firstly, as always there’s been more tests and scans. I get a cat scan every year with contrast on my heart to keep an eye on the clot and ulcer that I have on my aorta which they think caused my stroke . In good news the clot is completely gone. That is great news as it was a constant worry with every stumble and fall, as I do a lot of that, that I would dislodge something and suffer another stroke. The ulcer is weirdly still there but smaller. They still have no idea why it is there so there is that. Even my stroke doctor who I saw in September told me he’s talked to so many specialists about it trying to figure out why it happened, but they are “dumbfounded” to

Hope anyone reading this is keeping safe in this continuing covid madness. I got my two vaccines in the Summer so am waiting on my booster.  Health wise I've been, touch wood, ok! Usual levels of pain and fatigue nothing added on. I did get two pieces of good news since last time I posted though.  Firstly my kidney, while shriveled up, is working at 80% so no need to worry for the time being also somehow over the months the bits of stone left have passed so I'm stone free which surprised me as I still get pain in my kidney area but the actually nice and patient doctor I saw in July said its probably residual pain to do with my fibromyalgia. He was so good and went though my old scans etc. to show me the differences in my kidney before and after everything. They'll be keeping an eye on my kidney yearly for more issues and stones and to watch the cyst I have on the same kidney. Other kidney is fine. Secondly the ulcer and clot I had in my aorta for still no apparent reason ha

Don’t forget I can be strong, I have been strong. Whether head high or tucked inside myself, Cocooning to get through. Even on the days that felt unreal, nightmarish with fear, darkness and pain. Struggling for every breath. I have danced along the tightrope of survival, Arms out wide to balance; arms in close to hold myself together even as parts of me fell away; forever. Onward even at a crawl, the depths conquered inch by inch step by hard earn step. I am brave even when I don’t feel it, even as the tears prickle. I am. Don’t forget. Kayt

 Woaps its been a while since I updated this thing!  Well were still all under the covid shower not so patiently waiting on vaccines to arrive. Personally this year has been so so for my medical wise, nothing major but still seems never ending some days. At the end of last year I had to have more rare disease blood tests and immediately afterwards CAT scans of my chest and my kidney area. Unfortunately I have SHIT veins, really shit veins. They finally got the blood out with a butterfly needle (the smallest one they hate using lol) and off I went to have the scans. Unfortunately, again, Id not realized foolishly I'd need contrast for the chest scan and so they started trying to find a vein. Id been told to fast and started to get a little light headed (masks do not help in these instances) as they dug about in my arm trying unsuccessfully to find a vein and I had to lay down. Anyone who has spent anytime in hospital or worked in them knows there is always the magic vein getting per

At about 8.00pm this day last year having had a procedure on my kidney I began to cough in recovery, when I did so I would pee a little which isn’t something that happens me normally. At about 8.30 I realised though I could feel my leg I couldn’t move it at all. I honestly didn’t think to much about cause my body is odd but thankfully Dave told a nurse who called for a doctor . By the time he arrived I could no longer move my arm an ambulance was called and took 2 hours to a rrive. I remember that ambulance ride, the driver was going so fast that every time her had to hit the breaks I felt as it my brain would pop out the top of my skull. I was brought straight to resus. My blood pressure was through the roof and my oxygen level was ridiculously low. I don’t remember much after about that night that just faces I didn’t know moving over me, being lifted into various machines, not being able to breathe, Dave talking to me. I remember hearing them tell him they could only give me the clot